hey folks-
here is what i gathered from my notes. keep in mind there are things he mentioned that I did not write down, I wrote down what i felt pertained to me or my situation. Also, Dr. Burrascano's comeplete lecture notes can be viewed on the SE PA Lyme website. They can be viewed here------> www.lymepa.org
The DVD for the lecture will also be available later this month (October 2008)
I hope you find these helpful.
Key Factors in End Stage Lyme-
-Hormonal inbalances
-Diet
-lifestyle
-rest (or lack thereof)
-toxins
-nerve damage
-physciatric disturbances
-metabolic imbalances
-mitocondrial damage
Signs and Symptoms of tick borne illness
(i only wrote down the things i thought I needed to remember)
Lyme- afternoon elevated fever
Bart- CNS irritant, insomnia, jumpy, Gi upset, rapid relapse upon abx removal
Babesia- night sweats, global headaches, air hunger, severe picture of lyme
Ehriclia- Headaches behind eyes, sore muscles, low wbc
Myco- patients symptoms worse with exercise, major neuro symptoms, found IN SICKEST PATIENTS & MOST IMPORTANT CO INFECTION
Testing-
Lyme- Western Blot W/ all bands, PCR, & urine antigen testing
Babesia- Sereology, Fish, PCR, or blood smear
Bart, Ehricilia, Myco, HHV-6, EBV, CMV- Sereology or PCR
Treatment-
Best Combo for long term chronic treatment-
Cell wall drug
Intracellular drug
Fluid & Tissue Drug
Spiral, L Form, and Cyst drug
example- bicillin, rifampin, biaxin, flagyl
Doses of abx MUST be pushed to maximum tolerable levels
Best orals in Dr. B's experience in order of effectiveness: biaxin, ketek, doxy, zith, minocin
Patients require a course of Flagyl
Treat Bartonella before babesia
Give any regimen 6-12 weeks before changing it
Treatment length must continue 2-3 months AFTER all signs & symptoms have disappeared
Consider "cycle therapy" (discussed in "cure unknown")
not reccommended for very ill patients. when ready, hit it hard with everything, then stop. wait 3-4 weeks for all symptoms to come back hard, repeat. expect brutal herxing.
Co-infection treatment
Babesia- Mepron, maleron. blood levels must be monitored. combine w 2 other drugs such as zith & art. 5 months treatment minimum. NO tetras w mepron or maleron
Bartonella- Levaquin drug of choice, do not pair w an erithromycin (biaxin, etc)
combine w cell wall drugs
can use w tetras & azoles
alternatives to levaquin are combos of rifampin, sulfur, biaxin, and rarely gentamycin
Ehriclia- easy to cure, 2-4 weeks tetras
Mycoplasma- worst case scenario for lyme patients
best regimen not known altho current info suggests 2-3 year treatment of therapy. combos of intracellular drugs are currently most promising
DNA viruses- HHV, EBV, CMV, ETC
Valcyte always better than valtrex
treat 3 months minimum, often patients respond after 3 months but have no response whatsoever prior. treatment can be applied to igg or igm, no one knows yet..
and for the best part....the NEW stuff-
igenex can now test for Bb surface proteins for bands 31, 34, and 41 which means all you band 41ers can tell if your band is lyme or not! doesnt mean u dont have lyme, but can help narrow down..
new fish tests for ducani and Wa-1
new better cd57 test thru labcorp
new better cytokine testing
new infections rising such as micro worms, west nile virus, q fever, tularemia, and TBE virus
bartonella may in fact be tularemia in some patients due to the similar symptoms
DR B NEEDS YOU ALL TO GET YOUR DRS TO SIGN YOU UP FOR THE LYME REGISTRY. it is the ONLY way we will win the war, we have to document our info for the idsa, etc...
EXERCISE- crucial as we all know, push yourself, the more you do, the better youll get. NO exercise, not going to get well. Gym or health club regimens are best. ones designed for ill lymies are best also.
and finally-- TIGACYL. dr b says this has ALOT of promise, has built in efflux pump inhibitor, and combine w biaxin or ketek has a good chance at helping people get to a better place of health. very effective for most co infections. studies on the drug not out yet for lymies, but is PROMISING. if insurance will pay for, try it. very expensive otherwise
and thats it.
hope it helped
Saturday, October 4, 2008
Sunday, December 30, 2007
Lyme, Coinfection, and Tick Borne Diseases Suggested Reading-
This information is useful for the “Lyme” disease patient as well as any practitioner involved in the process of helping their patient cope, heal, and discover their own path to recovery.
Dr. Schaller's books- (babesia and bartonella, to be added...)
Websites-
This website gets over 60,000 hits a day, making it the most prominent and well known site for Lyme Disease suffers worldwide. It has various useful forums and threads where Lyme sufferers share information pertaining to things such as finding a LLMD (Lyme-literate medical doctor), general medical questions and support, and a host of other useful tools. Lyme.net is extremely useful and provides endless invaluable information on a controversial topic directly from doctors and Lyme patients themselves.
This website helps those with Lyme Disease to log their feelings, thoughts and symptoms each day as well as exercise or activities completed and medication taken during that day. It works best when someone else reviews the log which can keep you motivated to log. It is also an effective way for the Lyme patient and his/her doctor to share and keep track of the above mentioned information.
Healingwell.com is a thriving community and information resource for patients, caregivers, and families coping with diseases, disorders and chronic illness. This website offers forums and threads similar to Lyme.net where the Lyme patient or curious practitioner can go for reliable, accurate information.
Books & Other Suggested Reading-
Joseph Burrascano JR MD
President, East End Medical Associates P.C. , East Hamptom, Ny
Board Member, International Lyme and Associated Diseases Society
“Advanced Topics In Lyme Disease” Diagnostic Hints And Treatment Guidelines for Lyme And Other Tick Borne Illnesses.
This extremely useful guide and definitley most useful tool for lyme patients can be found on the web by going to Ilads.org and selecting Dr. Burrascano's guideline's from the treatment guidelines section on the left hand side of the page. Of all the suggested reading listed below and elsewhere in my opinion, this is the cheapest (it's free!) and the most useful. KEEP AN EYE OUT FOR NEW GUIDELINES COMING SOON!!
Stephen Harrod Bunher
Foreward by Wendy Leffel, M.D.
“Healing Lyme” Natural Healing and prevention of Lyme Borreliosis and It's Coinfections
This book is a wealth of information, providing the reader with in-depth detailed information on how the Lyme disease spirochete actually thrives, reproduces, and becomes resistant to antibiotic treatment. Although in my opinion his alternative herbal based treatment options are not always the best choice for the Lyme patient, the book itself is profound. Buhner's book offers so much insight into the mechanism of the Lyme spirochete that it really is a must read for Lyme patients and practitioners alike.
Bryan Rosner
Foreward by James Schaller, M.D.
“The Top 10 Lyme Disease Treatments” Defeat Lyme Disease with the best of Conventional and Alternative Medicine
This book is a must have for the chronic Lyme patient or practitioner.
It is a practical guide to understanding modern treatments and building a comprehensive treatment plan. It offers new hope to Chronic Lyme patients who have little or no knowledge of the wide variety of treatment options that are readily available to them without the prescription of a medical doctor.
Rosner's book provides a unbiased and practical approach to beating Lyme and Associated diseases with an integrative approach, using both conventional and alternative treatment methods. Although Rosner is not a doctor and some of his views concerning treatment methods I utterly disagree with, I feel as lyme patients we should give his work a chance as it does have some thoughful insights into new ways we can be tackling the issue of chronic lyme.
Dr. Timothy Brantley
“Heal Your Body, Save Your Life” The 12 Week Plan to Prevent and Reverse Cancer, Heart Disease, Obesity, and More.
This book provides a radical approach to the reader offering a means of healing through diet and nutritional changes. Although it focuses mainly on diseases such as cancer and heart conditions, it does offer the Lyme patient valuable insight concerning the role their diet can play in the healing of their own conditions.
Bryan Rosner
Foreward by Richard Loyd, Ph.D. (coordinator of the annual rife international health conference)
“When Antibiotics Fail” Lyme Disease & Rife Machines, With Critical Evaluation of Leading Alternative Therapies
This book offers chronic Lyme Disease patients an entirely different and often controversial means of attempting to eradicate their infections. It offers insight and expert advice into the field of Rife machine technology, and offers the antibiotic refractory Lyme disease sufferer an alternative means of therapy. Although I am not entirely sold on the use of rife machines and their application in the treatment of lyme disease, I have spoken to people who swear by them and again, I feel it is our duty as lyme patients to get all the information available out to others who are suffering, as there is a great void where there should be a wealth of readily accessible information.
Kenneth B. Singelton M.D. M.P.H.
Foreward by James A. Duke Ph.D.
“The Lyme Disease Solution”
Available now. One of the most comprehensive book on Lyme and related illnesses ever published.
Topics include:
History, biology, prevention and controversy surrounding Lyme
Signs and symptoms of Lyme and the major co-infections
Diagnostic testing for Lyme and co-infections
Lyme disease and the impact on the immune system, including strategies for strengthening and regulating the immune system
The Lyme Inflammation Diet, the most complete nutritional approach to Lyme-induced chronic inflammation
Treatment principles for Lyme and other tick-borne diseases including discussions of antibiotics, herbs, nutrients, and other novel-therapies that have been found effective
Thorough discussion of conventional and alternative treatments for specific Lyme-related issues such as pain, inflammation, energy depletion, endocrine issues, gastrointestinal problems, liver issues, anxiety, depression, neurological problems, detoxification (including heavy metals) and sleep problems
Methods and techniques for dealing with psycho-spiritual-emotional issues related to chronic diseases such as Lyme disease
Dr. Schaller's books- (babesia and bartonella, to be added...)
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